Support Group Meetings

Our monthly meetings will be at Kiwanis Recreation Center, 352 Devers Street, Fayetteville, NC on the second Saturday of each month. Time is 10:00 AM through completion by 12:00 PM .  Every meeting coffee, drinks, ice, cups, plates and utensils will be provided.  We ask your support for snacks.  Bring what you want, all normally works out.  We may have guest speakers, however we will make sure a sound portion of each meeting is dedicated for us just to talk, share, and educate. 

Notes:

* facility scheduled confirmed at Fayetteville/Cumberland Parks & Recreation, Kiwanis Rec Center, thru calendar year 2023.

*Guest speakers or activities will be added to these dates as they become available.
































Past Schedule

Jan 11

Feb 8 

How to slow the prognosis with exercise.

Taylor Saunders, SPT Campbell University College


Mar 14 Dr. Miriam Sklerov, MD, MS Assistant Professor of Neurology UNC "the caregiver role in office visits ..CANCELLED TILL LATER DATE

Apr 11

May 9 ZOOM MEETING 

Jun 13

Jul  11 zoom meeting

Aug 8 Dr. Mitchel, Duke University

Sep 12

Oct 10

Nov 14

Dec 11

Zoom meetings: 

For first time users, To download the app on your desktop, go to Zoom.com and select the button, “Sign up, it’s free.” Once you sign up using your email address, you will fill out your information. Then, you will proceed to download the Zoom app onto your desktop using the Zoom Installer.

You can use via computer, tablet or phone.

For Apple: Video Conferencing, Web Conferencing, Webinars, Screen Sharing - Zoom

 https://apps.apple.com/us/app/zoom-cloud-meetings/id546505307

For Android:

https://play.google.com/store/apps/details?id=us.zoom.videomeetings


Then click or copy the Join Zoom meeting link below to join our specific meeting

   


       Jul 11, 2020 10:00 AM

       Aug 8, 2020 10:00 AM

       Sep 12, 2020 10:00 AM    

       Oct 10, 2020 10:00 AM

       Nov 14, 2020 10:00 AM

       Dec 12, 2020 10:00 AM


To download and import the following To an iCalendar (.ics) files on your calendar system.  Monthly: https://us04web.zoom.us/meeting/upcud-6qqD4qGtHtAQwgWNYTBDW47rFaUiHF/ics?icsToken=98tyKu6rrTstGNKQsBmCR7YqA4igKOrwpiVfjbd1iD7UFCdkTDrCFMZ1ZuVtNtnl


Join Zoom Meeting

https://us04web.zoom.us/j/73307265005?pwd=WS9RVk1vb1BqWDVPSGVBdU9qMWNlUT09


Meeting ID: 733 0726 5005

Password: Parkinsons

2019

Feb 9

Mar 9 

Apr 13

May 11 Abbott rep. about DBS.

Jun. 8  Picnic at Spring Lake's Mendossa Park.

Jul 13 

Aug 10 Brian Finnegan, Acorda Therapeutics, and a good open discussion.

Sep 14 open forum great discussions

Oct 12 

Nov 9 

Dec 14



Feb 9th

short video on Myths about levodopa  Led to a lengthy discussion. 

short video on Dyskinesia

short video on Sleep disturbances    and Parkinson’s


A personal journey with CBD oil.  With Steve Rigby.

2018

Jan 13,   large group of Parkinson's patients have hallucinations (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4685050/ ) extracampine hallucinations ... seeing or sensing something near, perceived not as a visual hallucination but as a vague feeling of somebody being near. 

Issues with glasses, double vision. Recommended to the group Dr.David B. Throneburg, O.D Carolina eye Associates

Feb 10   Chris Vocke from AbbVie and Joanne Nemeth a Duopa nurse 

Mar 10  Carolina J. Smith, M.S., CCC-SLP Clinical Assistant Professor of Speech-Language Pathology

Apr

May

Jun

Jul

Aug

Sep

Oct 13 2018

Nov 10 John Howland, Boston Scientific 

Dec 8

Jan 12, 2019

H.M. Michaux Jr. School of Education 700 Cecil Street Suite 1033 North Carolina Central University

Durham, NC 27707 919-530-5118 carolinajanesmith@gmail.com We offer free speech therapy services to all clients including LSVT.

Apr 14 Christopher Sparks, Medtronic's

May 12

Jun 9

Jul 14

Aug 11  Diana Parrish Parkinson's Org.

9/8 (scheduling conflict) Katie T Durham, LCSW Center Coordinator & Clinical Social Worker, Movement Disorders Center

Duke University Medical Center, Ph:  (919) 681-2656, Fax: (919) 668-2868

Oct 13

Nov 10

Dec  8

Previous Meetings

2017 

Jan 14 open session

Feb 11

Mar 11 Review of todays meeting;  

Loss of weight with Parkinson’s.  It is very common for people with Parkinson’s to lose weight. Doctor’s may recommend a protein rich diet.  Take meds 60 minutes from meal time.

exercise and sustainment program at Advance Therapy.  Covered by Medicare, Tricare and some other insurances. 

The positive power of religion in dealing with stresses from Parkinson’s.

Local neurologist vs the benefit of a movement disorders neurologist.

Double vision

Support from family members

Work with your caregiver so they get some much needed personal time.

Music and movement.

Driving with PD.

Caregiver breakout.  Caregivers talked about challenges that affect them.  

Apr 8 Open discussion.  leg cramps   http://www.livestrong.com/article/417443-vitamins-minerals-for-leg-cramps/

local Doctor's that treat PD

May 13 2017 open discussion

Jun 10 Picnic

Jul 8 CANCELLED

Aug 12  Bladder Disturbances in Parkinson's Disease Dr, Deng. Daily Kegel exercises, trim prostate to free ureter vs potential prostate removal. controlling leaks with pads or medication.

Sep 9  Video-Fox on Parkinson's

Oct 14 Video- Depression & Anxiety with Parkinson's

Nov 11 Open Discussion- Caregivers Month- Caregivers take time for yourself

Dec 9  Video- Davis Phiney Foundation - the importance of exercise.  It's like the stock market...sometimes it works a little sometimes a lot, Sometimes not at all.  But overall, it's good.

2016

9 Jan 2016 no meeting

13 Feb  no speaker 

12 Mar  Kenneth Jackson, PharmD Sr. Medical Science Liaison Lundbeck Pharmaceuticals Services, LLC

9 Apr   Amber Snyder, MS, CCC-SLP, a Speech pathologist,with SpeechEasyPD, LSVT certified and believe there is no one path of treatment for everyone. Greenville, NC 

14 May  Christopher Sparks   “Advanced Therapies for PD Motor Symptom Management”. 

medication effects on PD.  Updates from Medtronic's on DBS

Do security scanners impacting the DBS stimulator, if the device has been replaced since 2011, it does not have a magnetic switch in it to turn it on and off. The Activa stimulators (that have been in use for 5 years) are fully shielded and would not be impacted by electromagnetic fields that would be encountered in everyday activities.

11 Jun Summer Picnic

9 Jul  Open meeting - discussed doctor's for your medical team, local LS Big and continuation program, buying aids via medicare,;

hallucinations and medication, drooling, pain and fatigue, medication's at mealtime, and much more. 

13 Aug Cancelled     

10 Sep Benefits of Exercise: Boxing

9 Rounds boxing.  An excellant testimonial from on of our members on the benefits of exercise and how exercise can reduce the amount of medication needed or extend the affect of medication to avoid off times. 9 Rounds offers 9 three minute rounds of boxing exercises. No impact. 

8 Oct  cancelled Hurricane Matthew

12 Nov Benefits of Exercise: LSVT Big Advanced Physical Therapy Solutions,  speaker; Neisha Wetzel A very good, group interactive demonstration. 

10 Dec Caroline Ha a junior in high school arraigned with Allison G. Hingley, MT-BC Owner, Neurologic Music Therapist, Atlantic Music Therapy an exception presentation about music therapy. This was Caroline’s first presentation. A job well done. 

The second hour, and with a new title of Doctor of Physical Therapy, Dr. Deborah Constantine, from Campbell University spoke about falling and getting up, C.L.I.M.B.  She has a background as a Clinical Assistant Professor of Health Professional Studies, DPT , University of North Carolina at Chapel Hill, MHS, Physical Therapy, University of Indianapolis,BS, Physical Therapy, University of Maryland at Baltimore.

10 Dec Benefits of Exercise: Music Therapy Caroline Ha and Allison Hingley, Atlantic Music Therapy, LLC .  Second hour Deborah Constantine, Board Certified Geriatric Specialist, Clinical Assistant Professor-Health Studies, Campbell University

2015

Jan 10 - 1000

Feb 14 - 1000  Guest Speaker: Shannon Armstrong, RN BSN  Subject:  APOKYN (apomorphine hydrochloride injection) to treat off-episodes.  Thorough discussion on new medications 

Mar 28 - 1000  Guest Speaker: Cape Fear Valley Hospital Chaplain Mitch Watson -"How the Chaplain can assist you while in the  hospital. "  Outstanding discussion on ministers working with those of another faith. 

Apr 11 - 1000  "Challenges of Dental Hygiene for Parkinsons Patients"   Dr. Claude Dowd

An excellant presentation on teeth care and the challenges presented by Parkinson's.

May 09 - 1000  Guest Speaker: from Duke Neurology Social Worker Arlene D'Alli "Dealing with Parkinson's" focusing on caregivers  

Thank you for your presentation. Very involved crowd and thought provoking discussion.

June 13 - 1000  Picnic (Off-site) 

Shaw Cabin, our hidden hideaway with it's own little lake.  Lots of good food.

July 11 - 1000   Guest Speaker: Heather Hammond, MA  Program Manager ~ Parkinson Association of the Carolinas  Her topic(s) PAC's role and "Living well with Parkinson"s"

Aug 08 - 1000  Guest Speaker::  Chris Sparks, Medtronic's “Advanced Therapies for PD Motor Symptom Management”. The presentation provides an explanation of the 6 classes of medications that are currently used to treat PD motor symptoms (tremor, rigidity, bradykinesia, dyskinesia) as well as a discussion of the strategies that determine when each type of medication may be suggested. It also provides an overview of surgical options (Levadopa pump, Deep Brain Stimulation, Focused Ultrasound) and a discussion of when a surgical option is warranted.  A unique presentation that simplified the affects on medications and other treatments for Parkinson's Disease.  Some members said they had heard these topics many times but never came away with an understanding that Chris Sparks provided. 

September 12th  Meagan E. Honaker Marketing Coordinator, , St. Joseph of the Pines talking about PACE- the government Program of All-Inclusive Care for the Elderly .  A very good presentation on a program to assist those needing medical or caregiver support  during day 8-5, one or more times a week.  

Oct 2015 - Picnic at Ida's 

Nov 2015 Speaker: Mandy Hurley, Cumberland County, The Council on Older Adults,  in home aids and support. 

Dec 2015 

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