IEEE NJ Coast SIGHT Group Highlights

Do Good Things Health and Justice for All -- COVID-19 Healthcare and Health Device Literacy Training (21-COV2-302)

DIITA Statement Draft

Also, Healthcare Lexicon Project, and DIITA Language and Learning:

Standardization of medical devices nomenclature, Conversational Lexicon, ICD-11, DSM-V, Scope of Practice, Medical Devices Lexicon, Culturally and Linguistically Appropriate Services Health and Human Services (CLAS-HHS), Automated Training Systems, Workplace Performance Support, Multiple Interfaces, etc.

Statement of Purpose:

Transparent Design for Well-being to foster and advance technology to benefit humanity.

In order to promote Dignity, Humanity, Digital Inclusion, Identity, Trust, Accessibility (DIITA), our team will initially address issues at the intersection of technology and human factors including but not limited to the following:

Our team has identified the rapidly evolving condition which was further unmasked by the COVID-19 pandemic: a series of urgent global and universal needs wherein technology plays a significant role in resilience and Well-being for all human beings; yet each person is not Included. Without Transparent Design for Well-being and Accessibility in technology solutions, systems and technology complexities, processes, costs, bias, variation, and lack of inclusion can place significant burden on the individual, a lack of navigation support, a sort of tax, leading to poor outcomes with a compounding cascade of effects across generations.

This situation leads to disparity, mortality, morbidity, for individuals, families, communities, populations, locally and globally.

Without Transparent Design for Well-being and Accessible technology, humans, their families and communities can suffer the most extreme consequences, interfering with life and Well-being.

It is our intention to facilitate a vision of the modernization and advancement of technology for humanity that considers diversity and inclusion for all human beings. These intentions are synergistic with our IEEE Humanitarian Activities Committee (HAC) / Special Interest Group for Humanitarian Technologies (SIGHT) Group efforts, which will provide one of the pipelines into the Workflow, and align with a variety of local and global humanitarian efforts including but not limited to: United Nations Sustainable Development Goals, Culturally and Linguistically Appropriate Systems – Health and Human Services (CLAS-HHS), Social Determinants of Health (SDOH), Americans with Disabilities Act (ADA), etc.

The team initially identified four key drivers for the Transparent Design for Well-being workflow which:

1) Health & medical device literacy; 2) Culturally & Linguistically Appropriate System (CLAS-HHS) design for dignity & identity;

3) Increase diversity & representation / reduce bias in research literature & projects;

4) Increase diversity & representation in technology & AI ML (gender, skin color, age, pre-existing conditions, etc.).

These have led to initial directions for the workflow. For example, some of the Digital and Identity related bias and variability identified by the team includes Accessibility to technology, connectivity, power and energy, Identity and Inclusion based in resources such as economics, language, culture, communication abilities, learning styles, subject matter expertise, location, biological variability for example, skin color, preexisting conditions and life stage, mobility, cognitive abilities, individual, family, and community resources, etc.

Our team suggests that Transparent Design for Well-being addressing technology, associated processes and systems can become an integral part of modernizing interoperable solutions, design principles, policies and standards that reach individuals,

communities, groups, locally and globally, to elevate Dignity, recognize Humanity, provide Digital Inclusion, enhance and promote respect for Identity, inspire and promote Trust, facilitate Accessibility and Accommodation, and to benefit life and Well-being to advance technology for all diverse humanity.

In one topic or thread, the team will initially address improving Transparent Design for Well-being of health information and medical device instructions, Health and Medical Device.

Within the Health and Medical Device thread, the team will investigate methods to improve related Literacy needs. One approach is to approach the needs of various Communities of Interest (COI), Culturally and Linguistically Appropriate Solutions (CLAS-HHS), levels of literacy, subject matter expertise, learning styles, and experience.

In order to promote Dignity, Humanity, Digital Inclusion, Identity, Trust, Accessibility (DIITA), our team will initially address issues within contexts that may be modeled by Topics and or in Use Cases including but not limited to: 1) Health and Medical Device Literacy, 2) Secure Power and Information Network Manager – SPIN (acronym placeholder), 3) Research and Publications.

1) Health and Medical Device Literacy

A parent, caregiver, patient, student, teacher, researcher, healthcare professional may be bilingual, or may have a level of literacy, or subject matter expertise that is not matching the literacy needs, or thorough and sufficient in product knowledge. This situation will become more complex over time, in particular, as Software as a Medical Device (SaMD) evolves. If an interpreter or translation is not available or convenient, there may be delays or difficulty, or inadequate ability for the patient, caregiver, student, etc. to participate in the communication, plan, treatment, follow up. Technology may improve communication, improve ability to interpret cultural needs, provide simultaneous translation of languages, media, level of literacy, subject matter literacy, lived experience, etc. to improve performance for all persons involved. When people can address their health and medical device literacy with the best matched cultural, language, communication and learning styles, Dignity, Identity, Inclusion, Trust and Agency can be promoted through Transparent Design for Well-being – Health and Medical Device Literacy.

2) Secure Power and Information Network Manager – SPIN (acronym placeholder)

In order to promote Dignity, Humanity, Digital Inclusion, Identity, Trust, Accessibility (DIITA), our team will address issues at the intersection of technology and human factors to provide secure artificial intelligent machine learning (AI ML), network interface, distributed management of power, energy, communication systems, privacy, oversight for specialty needs including but not limited to use cases such as Hospital at Home through Transparent Design for Well-being – Secure Power and Information Network Manager (SPIN).

3) Research and Publications

In order to promote Dignity, Humanity, Digital Inclusion, Identity, Trust, Accessibility (DIITA), through the thread Transparent Design for Well-being – Research and Publications our team will address issues within scientific, health, and engineering research, conference, research and publications with multidimensional improved curation to reduce bias, address variability, promote inclusion, equity and diversity. Through multidimensional efforts, the team aims to reduce bias and improve inclusion and diversity in data, algorithms, systems, applications, and research. For example, the team can engage with methods and resources to improve representation. In publications, Editors can actively encourage authors, researchers, and other participants to improve representation of authors and studies with attention to inclusion, diversity, scope and scale of the population in each study, paper, conference, presentation, publication, distribution, access to research, etc. Some goals include but are not limited to: Test Subjects by age, health status, specific pre-existing conditions, race, skin color, cultural, gender, minority, underrepresented, location, etc. included and excluded; Published Researchers by gender, age, health status, specific pre-existing conditions, race, cultural, national identity, access to publications, languages accessibility for communications disabilities published, included and excluded; Conference Presenters by gender, age, health status, specific pre-existing conditions, race, cultural, national identity, access to conferences, included and excluded.